A young girl looks in the mirror and freezes all inside. What she sees there scares her, leads to despair. This is a mistake! Nature was mistaken when played puzzles with her genetic code. Giant facial features, the curvature of the spine, spots on the skin... A rare Albright's syndrome distorts not only the appearance but also the life of the 24-year-old Victoria Komar from the village of Mokvin.
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There were tons of joy and happiness when the Melnikov family gave birth to the twin girls: two wonderful daughters Tetiana and Svitlanka. But something went wrong, and after the cesarean section, Svitlanka was taken to the resuscitation department of the maternity clinic. The week in convulsions... Doctors only shrug their shoulders! They said that we had to accept that the child would never be like her sister. However, her mother did not want to put up with it. And she continued looking for opportunities to cure Svitlana of such condition. When the daughter was transferred to the regional hospital, the convulsions stopped, the child began to breathe on her own and recover.
Immediately after the birth of Masha, the doctors stunned her mother, saying that her girl was sick. When she was one year old, she was diagnosed with cerebral palsy and the worst: they said that Mary could not walk. However, through the efforts of doctors, parents and massage therapists, the girl did make her first steps at the age of three. She developed more slowly than the other children, each new skill she was given with great effort.
Two year old Sofiika Pavliuk is struggling for her legs to walk, and her hands to be able to grab a spoon, a toy and to hug her mother. Sofiika has microcephaly, syndrome of motive violations,hypoxic-ischemic lesion of central nervous system. She is two years old and she cannot sit, cannot walk. But she already learned to roll herself over, follow moving objects, smile in reply to parents. This success is a result of constant stimulating medications and regular courses of physical rehabilitation. Sofiika cannot do without them.
Monthly, almost 80 children of all ages are treated at Dolyna Children’s Hospital. While medical professionals are being treated their young patients, Charity foundation “Ty-Anhel (You is an Angel)” decided not to be away and do something with his hand. The idea came at once - to purchase sets of bright, colorful and pleasing to the touch bedclothes!
Three years ago, Veronica was born. Deliveries were premature, the cesarean was made by asphyxiating the future mother. The girl was rescued in the intensive care unit, she developed jaundice, and Veronica immediately received blood transfusions. This led to irreversible changes in the central nervous system of the babe – she was diagnosed with a syndrome of movement disorders, and later – cerebral palsy.
Did these people think when they were young, healthy, full of strength, that they would once find themselves in the hands of the benefactors and would come every day for lunch and a good word to the Charity dining room? Probably not thinking. However, sometimes it happens that it is difficult to get sick, losing everything: health, strength, some resources, becoming old and infirm, suddenly becoming unnecessary to anyone, and forced to live a measured time in extreme poverty...
Summer will come soon – it's time for rest and positive emotions. During this period of the year, the children have school summer vacations, during which they swim in the sea or sunbathe on the beach, or go with their parents to the mountains. Summer is the time of joy, fun, and picnics, isn't it? And what about at this time to be children who are deprived of parental love, care, and support? Where at this time to go to boys and girls who do not have a large loving family, or in which the family is associated with alcohol, drugs, beatings, insults? Their every day is a solid gray routine. Of course, we try to add color to the life of our wards. We organize sightseeing tours, picnics, sometimes we manage to go to the cinema or theater for a performance.
"It seemed to us that we kept the disease under control, but the second concomitant diagnosis – liver cirrhosis, complicated by portal hypertension, pulled the rug out from under us. Again pain, despair, understanding of our own helplessness", mom tells. Girl’s father lost his health working hard physically, earning on another day of his daughter’s life, and got a disability, now only mother can work. But the main Khrystyna's disease – cystic fibrosis – does not allow any treatment interruptions. Both equipment and medicine are needed right there and then, regularly. And they are very expensive. Help now to make a vital supply for Khrystyna.
Preschoolers Nastusya and Timofiyko, schoolchildren Sasha and Vitaliy, students Denis and Yana – what unites them? All of them were born with a genetic disease, cystic fibrosis. This is a rare disease, which is strikes, first and foremost, in the lungs. Abnormal thick mucus blocks the lungs, causing severe infections that provoke obsessive coughing, pneumonia, bronchitis and other complications.
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